How life would be without thalassaemia: Patients’ perceptions

Christina Loizou; Constantinos N. Phellas; Stefan Beck; Maria Karekla; Michalis Talias; Soteroulla Christou; Natalia Michaelidou; Costas S. Constantinou

How life would be without thalassaemia: Patients’ perceptions

Christina Loizou, Constantinos N. Phellas, Stefan Beck, Maria Karekla, Michalis Talias, Soteroulla Christou, Natalia Michaelidou, Costas S. Constantinou

Research output: Contribution to journal › Article › peer-review

Abstract

This article focuses on the experiences of patients with thalassaemia in Cyprus. Through a qualitative study of 10 patients and their spouses, this paper shows that thalassaemia is a restricting experience due to blood transfusions and especially iron-chelation therapy, while without such a disease, patients would be better able to fulfil their goals in life. The research participants indicated that thalassaemia impacts on patients' personal identities and the fatigue and stigma that they often experience can cause disruption to their routine, social life, and leisure activities. The study was part of a larger quantitative study of the quality of life of patients with thalassaemia and was co-funded by the Republic of Cyprus and the European Regional Development Fund (EU).

Original language	English
Pages (from-to)	31-48
Number of pages	18
Journal	Cyprus Review
Volume	28
Issue number	1
Publication status	Published - 1 Mar 2016
Externally published	Yes

Keywords

Chronic illness experience
Cyprus
Thalassaemia

Cite this

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keywords = "Chronic illness experience, Cyprus, Thalassaemia",

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AU - Loizou, Christina

AU - Phellas, Constantinos N.

AU - Beck, Stefan

AU - Karekla, Maria

AU - Talias, Michalis

AU - Christou, Soteroulla

AU - Michaelidou, Natalia

AU - Constantinou, Costas S.

PY - 2016/3/1

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N2 - This article focuses on the experiences of patients with thalassaemia in Cyprus. Through a qualitative study of 10 patients and their spouses, this paper shows that thalassaemia is a restricting experience due to blood transfusions and especially iron-chelation therapy, while without such a disease, patients would be better able to fulfil their goals in life. The research participants indicated that thalassaemia impacts on patients' personal identities and the fatigue and stigma that they often experience can cause disruption to their routine, social life, and leisure activities. The study was part of a larger quantitative study of the quality of life of patients with thalassaemia and was co-funded by the Republic of Cyprus and the European Regional Development Fund (EU).

AB - This article focuses on the experiences of patients with thalassaemia in Cyprus. Through a qualitative study of 10 patients and their spouses, this paper shows that thalassaemia is a restricting experience due to blood transfusions and especially iron-chelation therapy, while without such a disease, patients would be better able to fulfil their goals in life. The research participants indicated that thalassaemia impacts on patients' personal identities and the fatigue and stigma that they often experience can cause disruption to their routine, social life, and leisure activities. The study was part of a larger quantitative study of the quality of life of patients with thalassaemia and was co-funded by the Republic of Cyprus and the European Regional Development Fund (EU).

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How life would be without thalassaemia: Patients’ perceptions

Abstract

Keywords

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